Tuesday, November 3, 2015

Borderline Personality Disorder and Me. I mean I, it and I. I mean me. Damn it.

I was doing some reading today on Borderline Personality Disorder ("BPD") which lead me to a You Tube documentary which took my breath away.  Not because it was artful but because it was me.  These people were me.  They were talking about me, and to me.  And they were talking to you as my friend or family.  As someone who knows me, and tries very hard to stay by my side and love me, they were talking to you. 

It's hard to explain what BPD is.  I try by saying, "I don't know what emotion should be where and when.  And that makes my behaviours hard to accept as a result.  I do things that may not seem logical in the moment because I don't know what to do with the emotion I feel.  It's because I was born over sensitive and things happened, life happened.  I stopped feeling what was normal in situations to protect my sensitive self, to protect me from hurt."  It's also genetics.  A pre-disposition to the disease in general but also under, and over, development of parts of my brain that differ from yours.  I am sure you've found yourself thinking, "she thinks awfully different than I do".  And I do.

As I watched the video I found myself writing down the thoughts I have that might differ from yours in the manner they actually presented themselves.  Examples of my thinking or what I think yours might be during one of my BPD episodes.  Maybe I was just thinking about you and something that happened between us.  Perhaps this will help you better understand me.  Maybe you can see how overwhelming the brain can be for a patient with BPD.  Some of the things below were said in the video and I could relate to, many were my own interpretations or thoughts.  

Trigger warning here.  Some of the things I wrote may upset you or even trigger you.

Borderline Personality patients are often compared to burn victims. Their emotions are like raw skin. If you poke them their reaction is so severe because they are already in so much pain. It's incomprehensible pain.


If there is no logic, I cannot process it. I have little emotional intelligence.


I laugh so big when you are happy because I feel your happiness.


I cry when you are sad because I am sad for you.


If you hurt, I hurt. I actually feel what you feel, perhaps even more so because I can't regulate my feelings. This makes me a narcissist in the minds of many. "It's not about you" they've said. 

Now imagine feeling the pain of someone else and not knowing how to process that, and then being told your a selfish ass for feeling it at all?


Don't hug her, she's feeling something and doesn't know what to do with it.


She's like a rabid animal when's she's angry.


Manipulative? It may appear so. Desperation. Is what it actually is.


I do not know how to exist without you. Even though we only just met.


I exist because you make me want to. When you leave me, I no longer see a reason to exist.


I hate you. Don't ever leave me please.


How can you be happy and angry at the exact same time?


You had everything. You were so together. Top of your game. What happened to you?  If only you saw me in the fetal position when I was left alone.


You're dramatic. I am.

I feel more than you can ever imagine. I don't express one eighth of what I feel.


That's drama.


I am worthless. Don't you dare make me feel more worthless.


Today is the greatest day I've ever had. Imagine the drop from that height. I feel that daily.


I drink to numb. I do drugs to numb. Then I have sex to be loved, while I am numb. Why doesn't this work?


I harm myself to feel anything.


I try to end my life to feel nothing.


I eat to feel pleasure but it causes me pain, so I eat to feel pleasure again, which causes me pain.


That stuffed toy I gave you seemed like nothing to you, it meant the entire world to me. I let you see the softer me. 


That stuffed toy you gave me is sacred. Until I get mad and throw it away. Then I have to rescue in desperation to save it because I abandoned it.


You liked her picture. You've never liked mine. You hate me. I hate you for hating me. Please love me. I shouldn't be here because you don't love me.


Please don't go.  Please love me. I can't believe I told you that.  I hate you for making me love. Come back, please. I beg of you. Thank god you're back. I hate this feeling of uncertainty. I can't trust you. Go away. No come back. I exist for you.


You see?  Desperation. Not manipulation.


I am not trying to get you to prove your love to me. I am trying to make myself believe you could actually love me.


Losing you is the hardest thing I have ever had to endure. I wish I hadn't pushed you away.


If you loved me, you would never have left me.


If I loved you or myself, I would never have forced you to go.


What is wrong with me?  Don't you feel this way?  Isn't this how you think?


I want to do wonderful things for everyone today. Why is this not making me wonderful?


I give to you so you will love me.


Everything I see is distorted.


Friend request sent. I Unfriend you.  Friend request sent. I Unfriend you.  Friend request sent. Unfriended. I understand why you no longer accept the request. I would no longer accept me either. 


It's a game you think. It's actually my mind. It's no game.


And when it's done to me. It's a potential hospitalization. It's not fair. There's no equality.  Trust me I know.


I am smart.  Don't argue with me. You think I am stupid. I am stupid.


When something doesn't work for you, you fix it.


When something doesn't work for me, I destroy it.


I will end you. Only because I will love you to death.


Get on with it. Smarten up. Shape up. They are just emotions.


Are you sure you aren't mad? Are you sure? How about now? Are you mad now? Do you love me still? Are you sure? Are you mad yet? You must be mad now? What do you mean you need space? Goodbye. I hate you. I hate me.


Come on. You can control this. I am worthless. Because I can't.


Telling you what I actually feel will make you leave me because I am crazy.


Your face changes and you become cold, visibly cold. It's frightening.  Do you love me in that moment?
 
No.  I actually don't.  It's like I am a different person inside in that moment.  I am not me.  I feel nothing for you.  Then I come back and I am scared to death you might leave.


Please don't worry.  I am safe.  I am working on my DBT skills today.  I will get through another day of this. There are things I am valuing more and more every day.  I am hoping to be the next thing I value most.  I just wanted to express this to you.  I wanted to share this for anyone else suffering from this disease.  I am changing.  It is getting better.  It's getting less dramatic in the ups and downs, the impact is lessening.  But I still have my moments.  Just ask the friend I've been begging to forgive me over nothing and the people I unfriended on Facebook the other night for nothing more than seemingly existing happily without me. 

We all have our good days and bad days don't we?




The documentary is "Back from the Edge" - Borderline Personality Disorder.





Thank you for being a friend.  xo











Thursday, October 15, 2015

Scared of dogs you say?

As many of you already know I have Borderline Personality Disorder, "BPD".  To keep it very simple for you not in the know, it's an emotion regulation mental disease where my emotions have not always been on point with the matter at hand.  As an example, I often get angry instead of feeling shame or fear .  That is a very simplified description of a very complicated illness.  What BPD is not, is 17 different personalities.  When people hear BPD they often think that.  BPD is not multiple personality disorder.  For the record, there are only 5 of me living on up in this here noodle.  Shut up, no you shut up, no you.... 

The treatment for this disorder is called DBT, Dialectual Behaviour Therapy.  This psychological treatment was derived originally from CBT, Cognitive Behaviour Therapy.  The basis for CBT was that anyone could change how they feel about something. If you change the patterns of thinking and behaviour then the result would be that you change they way they feel.  DBT was created because a doctor realized that perhaps it's not that easy.  Perhaps there must be an acceptance of one's feelings before anything could be changed.  And even if not changed, there could be this acceptance and set of skills to function and thrive with mental illness. 

I have done DBT since my stay in a mental health and recovery hospital in the summer of 2014.  I have been so occupied with the study of my own thoughts, the acceptance thereof, and the simple feeling of my emotions that I haven't been writing much.  Today, in DBT, I realized I had something I wanted to say.

I have struggled with the concepts behind both CBT and DBT in that I perceived the treatment to be of  the "fake it until you make it" ideologies and I detest that.  I do not believe that you can be a true, honest, real self while faking what you may not actually believe, think or feel.  I especially struggled with the idea that one can simply change the way they think or feel.  People often say, "be happy" and if you pretend it enough, it will happen.  I find that harmful to say because there are people out there with real mental disorders, chemical imbalances, perhaps addictions and they struggle to find any happiness.  How dare we make light of their struggle by saying the words, "be happy" like it was that simple.  I wasn't entirely wrong, nor was I entirely right about that. 

DBT often speaks of things like distraction, to take yourself away from the subject that's making you unhappy.  Or opposite action, the watching of something funny for example when sad.  I struggled with these.  How am I being honest with myself or anyone if I live life by distraction or pretending I wasn't feeling sad?  My doctor would say, "no, you use those tools when feeling the honest emotion isn't the effective option".  What now?  Pardon?  Do I change the subject and pretend I am happy or do I feel the sadness? Define "effective"? "It depends on the circumstances", I was told.  FUCK, what, when? 

Today, the bells and whistles sounded.  The heavens opened up and my doctor and I communicated on a level where I considered something called a hug I've heard people do when they find themselves connecting with someone. 

It goes something like this for example, and bear with me. 

If you are someone who is scared of dogs, what do you do?  You avoid dogs at all costs likely. 

By avoiding dogs, you prolong your fear of dogs. 

In fact, the avoidance of simply feeling that fear of dogs, will typically make the fear of dogs that much greater. 

It makes sense of the saying, "fear of the unknown".  

You avoid dogs because you are scared of them and the longer you avoid dogs the more scared you become until you can't even hear the word "dog" without wetting yourself. 

The idea of DBT is to face that fear while using skills to help you through it.  DBT says that until you actually sit in the pocket of that fear, until you feel it, it will always have a hold of you.  You must actually experience that fear, full on.  Your avoidance of your feelings, will perpetuate them.  Using practised DBT skills you face your feelings. 

Think safety precautions when I say "DBT skills".  Think professional dog trainer with a very well trained dog.  With those two things in place, your skills, you go and meet the dog.  When facing one's feelings one must be safe.  Frankly if you face an unknown dog with urine running down your leg shaking like a leaf the dog might act up.  You need to be in a very regulated environment where you can sit nose to nose with a dog and face your fear.  That safe environment would be a skill you learn in DBT. 

You might need to meet this dog for months, week after week.  Over and over again you sit facing that dog and feel the fear.  You might find yourself crying, breathing rapidly, heart racing, perhaps filled with irrational fear.  Those are simply moments in time that you must experience only to realize that.  They are just moments in time.

The dog and/or (vice versa) your feelings, will not harm you.  The fear will ebb and flow.  Climb and fall.  Come and go.  It will never last forever.  At some point the dog is going to leave right?  Or you will.

Once you find yourself accepting that you are indeed scared of dogs but that those feelings of being scared will not hurt you, then you might find yourself changing.  Your auto pilot thinking that dogs are scary might change.  Maybe not.  Maybe you will see a dog for the rest of your life and think, "they scare me".  That's your auto pilot thinking but that thought will no longer own you for longer than a nano second in time.  And by not owning you, it will no longer guide your every step.  It's just something you think.  It's not a fact.  Our thoughts are not facts.  Dogs are not all scary.  

Maybe you will no longer be scared simply hearing the word "dog".  Maybe you can walk past a dog on the street without peeing yourself.  Maybe not.  Some of our deepest thoughts and feelings aren't necessarily (see above right or wrong comment) changeable but our behaviours as a result can be. So you invest in Depends and go about your life no longer avoiding dog parks. 

What you can do now, is know that your fear of dogs is not going to actually hurt you...it's just a thought, and maybe even a feeling, but that doesn't hurt you or cause you pain. 

Not changing that diaper, that will cause you pain.  *chaffe*




Thursday, July 23, 2015

I can't find my words...

If you don’t already know much about me I suffer from Borderline Personality Disorder.  When I feel sadness, grief, loss, threatened, vulnerable, or any other feeling where most would cry and move on with it, I get angry and defend against feeling the hurt.  If I allow even the smallest amount of pain out expressing it to someone I love and trust, almost immediately I will lash out in anger because I feel exposed.  Rage takes over to prevent me from feeling more pain or being hurt by my expression of it.  I was once a very happy little girl then life happened, as it often does.  But I changed.  I developed these personality trait(s) as a cover up to hurt.  They weren’t helpful traits. 

I am in the middle of figuring all this out in intensive Dialectual Behaviour Therapy.  I am very raw.  All this hurt and pain I never let come out in 45 years is right there at the surface, wanting to come out, so I can be done with it.  And it’s there, all the time.  I am either about to explode into tears or into a rage to stop the tears.  I never stop thinking about whether what I am feeling is legit, or a cover up.  Am I being reasonable, or not? Is this genuine and authentic or bullshit?  Often I cannot even identify that until I sit down and do a chain analysis to see what happened and where that might have triggered something I couldn’t handle feeling or expressing. 

I can’t find my words. 

Every time I go to say anything I struggle, especially in a public forum like social media, I freeze and the following happens in my head:

Is this right?

Is this going to hurt anyone?

Will anyone think I am stupid?

Is this stupid?

Does this make sense?

Do I really need to say this?

What is the purpose of this?

Who does it serve?

Could I word this differently?

Is this offensive?

Is this funny or not funny?

What if they think I am stupid?

What if this hurts someone?

What if I am wrong?

What if I am not liked for these words?

9 times out of 10 I end up feeling very anxious and I don’t say anything. 

Sometimes I say things and then I sit and wait, praying it is okay, and that I won’t be judged negatively.  I can sit and obsess over a single sentence for hours.  You are probably thinking, “Then, keep busier”.  Just don’t go on social media.  Well this happens in public too.  With any interpersonal exchange.  I am often silent because I am worried about what I am going to say and what people will think.  I can spend hours after talking to someone wondering if I offended them, hurt them, or if they like me.  It’s agonizingly painful.  I can have a beautifully full and busy day and once I am alone for five minutes I start second guessing everything I did, said, or thought. 

I used to just say shit.  I didn’t care what you thought.  Then this stupid mental illness crept up on me. 

I used to have a pretty high end career.  People knew me.  I was productive.  I think I always struggled with interpersonal relationships.  I was often referred to as a “bitch”.  I was strong willed, opinionated, and aggressive.  Bitch is often what we are called when we are strong women.  People came to me to get shit done back in the day.  Then gradually I started struggling more and more with interpersonal relationships.  Work was becoming an emotional, not intellectual, battle.  I was stressing over things at work I couldn’t understand.  I was constantly wondering in meetings:

Is this right?

Is this going to hurt anyone’s feelings?

Will anyone think I am stupid?

Is this stupid?

Does this make sense?

Do I really need to say this?

What is the purpose of this?

Who does it serve?

Could I word this differently?

Is this offensive?

Is this funny or not funny?

What if they think I am stupid?

What if this hurts someone?

What if I am wrong?

What if I am not liked for these words?

It was the end of my career.  When I started arguing with people irrationally I knew it was time to go.  I knew when I started basing my decisions on how I felt and not what I knew intellectually, it was time to go.  I didn’t fit in there anymore.  I was full of emotion.  To go from that high functioning to where I am at today, over 8 years, is hard to explain.  I spent the first two years after leaving work trying to figure out how to be Nicolle and not Nicolle from Bay Street.  Then I spent the next three years trying to identify what was wrong with me.  I fell entirely into the abyss of depression.  I was misdiagnosed and had to go through endless medication changes until last year I ended up in the hospital for 60 days.  I was finally diagnosed properly and given a plan of action to get my life back.  Since then I have been working my ass off to accept who I am, what this means, and how to go about being the best new me I can. 

I know this is going to get better as I get more emotionally regulated and find more confidence in myself and my reactions.  And that takes work.  Every day I need to evaluate my reactions, my feelings, my emotions.  I have to rate them, and keep track of them.  I have homework each week from a skills class in DBT that teaches people like me how to feel what we feel and let it go.  Not to ride the train of emotions until it takes over every fibre of our being for great lengths of time.  And to be honest in our emotional exchanges.  If it hurts, it hurts.  Hurt is no reason to be angry.  Just feel the hurt.  To say this is an exhausting process is an understatement.  My mind rarely settled before all this started.  And now it’s busier. 

I am so volatile right now it takes every fibre of my being just to keep a lid on my reactions.  When I drive to the city for example and get around other people, some of whom are not very intelligent I become a different person.  I am all hyped up like I snorted cocaine for hours, I appear confident, funny, and aggressive.  But I feel anxiety building so fast and furious it’s like I am going to explode.  When someone pisses me off the rage that comes across me can be overwhelming.  But I keep it in check.  I have to.  You don’t let that loose.  So I lose my words.  My mind is too over stimulated and I can’t find my words.  Or conversely there are so many words that I can’t see straight.

By the time I get back home to my isolation, I could sleep for days I am so emotionally exhausted.   And then I can’t find my words. 

Lately I have been having these attacks, almost like seizures.  Where I feel like I am losing control of the electrical wiring in my brain.  Like I have no control of what’s happening up there.  This can be very common with this type of therapy if you go at it like I often do with things, FULL THROTTLE.  I am being monitored quite closely but you can see how this all might be a little, well, a lot. 

This is why I don’t talk much or write much anymore.  For right now, handling my thoughts and emotions is all the energy I have.  The balance goes to my dog, my step kids (teenagers, they'd suck the blood dry of a vampire I tell ya'), and my husband (an man sized child).  They get what’s left of me, in that order of importance.  Dogs first, humans second.  My motto in life as well. 

I have tons of things I want to say trust me, I usually do.  I just can’t find my words easily right now.  I will be back.  I have a few posts almost ready to go.  I just have to find that right moment in time where I have my words at hand.  
 
Thanks for the patience, support, and reading.  
 
 

 

 

Saturday, June 13, 2015

I Think I Might be Ignorant *sigh*


 
I posted the other day how silly I thought this story was that these people were apparently being arrested for pissing off a mountain.  I should have made that point clear.  That was my only point, one cannot piss off a mountain.  The people who worship the mountain, yes.  A mountain, no.  I said it when I posted that there are people all over the world trekking up mountains.  In some cases, climbers have been criticized for leaving their feces behind.  Apparently base camp at Mount Everest is a dumping ground.  But none of those mountains have retaliated was my punch line.  And the local people that worship continue to allow people to climb their places of worship.  I am confident that the shrine I worship at will not be open to the public.  It’s my private place.  Even with a sign reading “Princess” above.  I can say no more or news of it could get out. 

Scientifically it is ludicrous to think a mountain attacked the human race by causing an earthquake because these people got naked.  I will stand by that statement until the cows fly home with the pigs.  And when they flock together I will come on here, in my little public forum, and apologize profusely for doubting the mountain and its followers.  When I posted my thoughts some others jumped on my fool hearty band wagon agreeing with my, “this is ridiculous” statement.  It was all fun and games until that one person got offended on the mountain’s behalf. 

At the time of my post I didn’t make it clear that I actually believe these naked people were wrong.  In trying to make a funny, I forgot to fuck up my punch line with footnotes to that effect.  If these “young people” knew this was sacred ground as one of the guides said they did, they were wrong indeed.  Whether you believe in the spirituality itself doesn’t matter.  You cannot climb up on someone’s alter and shit on it.  The “young people” (as they are referred to in the press) claim they didn't know, and they were just being young people.  Being stupid young people.  So shouldn’t they be charged with being stupid young people?  Or indecent exposure, whichever costs the most.  But jail time?  For offending a mountain?  Keep in mind please, that was the charge some spiritual people wanted to bring against them, “offending the mountain and causing an earthquake”.  Sure you have a right to believe in that, but I have the same rights to not agree.  Don’t I?

One cannot just strip naked wherever you want, even at the ends of the earth with other people getting naked, unless it's legal.  And to know it is or isn’t legal means to know the laws of where you are at the time you are getting naked.  And this is what the defence attorney argued and the judge agreed with, in Malaysia, at the hearing for the two Canadians involved.  Law is law.  Getting naked was the offence.  Pissing off a mountain based on someone else’s spiritual belief, is not.

In defending the mountain someone referred to the naked young people (and by association anyone commenting on this article, including me) as, “typical North Americans”, both "self-righteous and ignorant" ... to the customs and beliefs of anyone outside of North America feeling it’s their right to shit in someone’s living room.  It was something to that affect.  I got really angry and deleted it all.  I do that sometimes.  It’s an impulse control thing when I can’t think straight.  I often find myself being offended and hurt which then rolls lightning fast into being offended and angry as fuck.  I have learned that’s part of who I am and to step away and breathe.  So I deleted it all then sat on this for most of the afternoon thinking about how I really felt and what I wanted to say.   And represented here is how I feel.  I put on my big girl panties and wrote this.  Oh, so you know, when I put on the aforementioned BGPs the outside did see me naked through an opening in my curtains so any rain today, totes my fault.  

Here is my defence.  The leader of the pack in this naked quest was not in fact from North America, but Europe.  I believe there were some Brits and Dutch.  Therefore, it was not “typical self-righteous ignorant North Americans” to blame entirely. 

The defence rests. 

No wait, I have more. 

The truth is the entire world is full of self-righteous ignoramuses.  I might even be one of them for thinking that being arrested for annoying a mountain is a plain old waste of time.  I believe we have a right, as human beings to challenge, question, even joke (oh no you di’ant) about beliefs, religions and spirituality.   But to literally shit on them, no, that might be pushing it.  I did not mean to shit on the Malaysian people as a whole.  I did mean to shit on the idea that you can be arrested for pissing on/off a mountain.  Apparently these kids urinated on the mountain.  When you gotta go…..I joke but really, where does one go up a mountain?  On Everest they use plastic bags and then leave them apparently.  Bleck.   

This is one of Malaysia’s top tourist sites. (Per the old Wikipedia, “Malaysia's top tourist destinations are the Mulu Caves, Perhentian Islands, Langkawi, Petronas Towers and Mount Kinabalu [the offended mountain in question]”).  It also happens to be a place of worship.  These are very conflicting ideals.  Profit versus worship.  Well they should be conflicting but are not according to Pastor Bill Ray on the Huntley channel every Sunday morning.  They are not as conflicting as one might think.  The laws need to be made clear for all the self-righteous ignoramuses travelling to this site with their disposable incomes.  No, that disposable income does not give them a right to shit on the Malaysian people.  But this is a tourist site, a tourist trap, a money maker.  If you are going to profit as a country off your tourist sites, and keep them as sacred places of worship, you need to make the rules clear to protect their integrity.  The law needs to be clear because us ignoramuses be dumb.  Apparently we like to get naked and think nothing of peeing when we have to pee. 

For the record, I do not believe the Malaysian people stupid in general for believing in the spirituality of nature.  I do believe that laws should be based on fact, scientific fact, and much less on religion.  Religious law always segregate against differing beliefs or lack thereof.  I don’t believe anyone has the right to arrest someone for offending a mountain any more than I think a Republican Christian Minister from Texas has the right to arrest a gay person because it offends their belief system.  If that makes me typically self-righteous and ignorant, so be it. 

I am no comedian but I believe that comedians have the right to say whatever the hell they want that’s why they are called rights and freedoms, granted to all.  If I don't like it then I either cringe my way through it, leave, or heckle.  If heckle is my choice then I had better expect a comeback.  This is my heckle comeback.  Yes, I am bracing myself.  I expect to be called something else for being this ignorant.  It’s funny because if I were a professional comedian then my words would likely be considered an "art form" and all bets would be off.  I wouldn’t be criticized or called ignorant I would be called challenging and confrontational, thought provoking.  Label it Art and most tend to climb down off the proverbial high horse.  “Freedom of expression is your god given (if you believe in that sort of thing), right”, they say.

I need a guidebook to get around all these rules in today’s society, I really do.   I have to mention that I do love when comedy is ironic.  I call humans assholes allll the time which oddly enough makes me an asshole by default for that whole, “I am a human thing”. 

*sigh*

It’s all so complicated. 

You judge me for judging and I judge you for judging me.  And none of us went to law school. 

Fuck.

  

Thursday, June 4, 2015

My First Anniversary #getloud #bellletstalk #endstigma #areyouokay

It's my first year anniversary.  AAD, After Almost Dying.  PSA, Post Suicide Attempt.  Shocked?  I know.  I just figured that one way to end the stigma of suicide and Mental Illness is to just throw this shit out there.  It is what it is.  I tried to kill myself a year ago today and apparently I wasn't very good at it.  I am still here.  I am beyond lucky.  I am surviving Mental Illness.

I am guessing you are still a little thrown off balance.  How can I seemingly make light of this?  I have to is how.  I am going to keep talking about my suicide attempt matter-of-factually until it stops being a shock.  I want you to feel uncomfortable until; you no longer feel uncomfortable.  I couldn't put it more simply than, suicides take lives.  Suicides are derived from Mental illness.  Mental Illness takes lives.  Every second of every minute of every day, like any other disease, people are dying from Mental Illness.  I tried to kill myself by an overdose a year ago today. 

Are you hiding from me now? 

Did you actually go hide? 

Did you consider unfriending me?

I bet you are unfollowing me?

Have you stopped reading this?

Is this too unhappy for you?

Maybe it's too negative, I mean you might already be struggling with a bad day?

Shall I post a video of baby animals?  Give me a minute. 

Until such time as we stop making Mental Illness taboo, the unspeakable, deaths are going to continue.  People need to be able to talk about how they feel without worrying that they are going to lose the people around them for any of the above reasons.  People with depression, who seem innately negative are suffering with Mental Illness.  They are not "negative nellies".  They are not in control of their thoughts.  They are very much lost and they need your love and support.  They need your understanding and compassion.  They need you to stop saying things like "negative thoughts equal a negative life".  Be that as it may be, they are sick.  They feel miserable.  Unhappy.  Alone.  They want to be anything but all that.  It might just take a little more time and effort than your saying, "just be happy", to get them out of it.  Love them.  Understand that.  You may not understand them but understand they are sick.

"Are you okay?"  Funny you should ask, because that is exactly what you should ask someone you think might be suicidal.  People suffering with Mental Illness are often so lost that this question, may be about the only safe question you can get away with.  The one question that might just push it's way through the darkness.  I remember prior to my suicide attempt being angry with someone as depressive people often are.  I was lashing out at them.  In the middle of that they said, out of nowhere, "Are you okay?" My thoughts raced, "How dare you ask that of me, that's not the point, you were mean to me".  Then I stopped and thought, "NO I am NOT okay.  I am really quite angry right now, unreasonably so, I think.  I am lost in this anger.  Why can't I get out of here?  I am dying inside right now.  I need help.  Someone fucking help me".  Even in that fit of rage, that question would hit home for me, "Are you okay?"  It's so simple really.  Was I okay?

Please don't ever stop asking, "Are you okay?" 

I am alive today because I talked about being suicidal.  I knew I was.  I knew I was feeling so dark that to end my life seemed like a better option than simply living it.  People around me, those that loved me, and had stuck with me, knew I was considering this.  They didn't leave me much room to hurt myself.  But room I found.  If someone is in so much pain they want to die, they are going to find a way to try.  The pain of Mental Illness can be unbearable.  Had I been left alone even an hour longer than I was, I wouldn't be here today.  I talked about being sick and it saved my life.  I got lucky because I talked.  Many are not this lucky.  

Please understand that I am not saying that knowing someone is suicidal will save their life.  But it might.  Certainly knowing someone is suicidal gives them a better chance at survival than silence does.  Often times, there is nothing we can do.  We cannot assume responsibility for another person's life or death.  Mental Illness is a disease.  Until they find a cure for all the various forms of this disease people are agonizingly going to suffer.  People are going to die.  If they do maybe, just maybe, some small part of your heart can find a shred of comfort in knowing that you gave that someone a shoulder, a sympathetic ear, love and compassion.  It's all anyone dying of disease could ask for. 

I know people who have died from suicide and those loved ones left behind will not admit that is how they died.  There is shame surrounding suicidal death.  The fact is, disease took a life.  I think people feel if they admit their loved one took their own life they are somehow admitting they failed them.  They feel responsible.  How did they not stop this?  Perhaps if we all talked more openly about Mental Illness and suicides (suicide attempts like mine) then people could live life with less suffering?  Both those stricken with the disease and those left behind.

Too many mentally ill people are suffering in silence, alone.  As are the families left behind in the wake of this disease. 

Admit to your suffering.  Awareness is key.

I got lucky because I talked.  Someone was listening.

I tried to kill myself and I am grateful I didn't succeed. 









 


Wednesday, June 3, 2015

Judgement

What is the difference between a flower and a weed? 

Only your perception of it.  The judgement YOU place upon the flower/weed. 

It's all in the eye of the beholder.

Judgement is a very hot topic in Mental Health these days.  Many of the go to therapies right now advocate for mindfulness of ones thoughts and judgements.  The thinking is that if you are mindful of your thoughts and judgements then those thoughts will eventually have much less impact.  Positive or negative, they will not be attached to such emotional upheaval. 

Being aware of the negative talk and judgement in our minds allows a person suffering with Mental Illness to identify how they might be causing themselves harm.  When people struggle with depression their thoughts are inevitably negative.  They find the negative in every day things.  They are expressive in a mostly negative manner.  And their thoughts are all negative, especially when directed at themselves.  It's part of the illness.  They are in such a dark place they see only darkness.  Seeing only darkness makes things seem....darker.  It's a vicious cycle. 

Mindfulness therapy asks you to be being aware of your thoughts, especially negative self talk.  It doesn't ask you to try to change the thoughts, from negative to positive.  That takes an immense amount of energy and strength most struggling with mental illness do not have, or cannot find.  Often times a person cannot even comprehend that.  The process asks that you just be aware of your thoughts and how they make you feel.  You ride out that thought process and the attached feelings.  Your simple awareness of your own thinking will become so automatic that each time it will have less and less an impact on how you feel.  Of course the hope is perhaps you will stop having the negative thoughts altogether once you become infinitely aware of them and how they affect you. 

Trying to just alter your thinking without an awareness of it would be unto itself, a mindless task.  Until I am aware of what I am actually doing, I cannot undo it.  I am not there yet, but I becoming aware of my negative self talk and how it makes me feel.  I negatively judge myself constantly which makes me feel very badly about myself.  I struggle with self love. 

Just so we are clear, I hate the expression "self love".  I always think I am some how saying I struggle with masturbation.  Which is clearly none of your business.

Often times in group therapy I will hear people ask, "when is it an opinion and when is it judgement?"

I do not like Coconut.

Coconut tastes like crap.

One is my opinion.  One is my passing judgement onto the poor coconut.

If I think someone is doing something stupid, that makes it my opinion of what they are doing.  It does not make them stupid.  It's a very fine line I like to cross often. 

But one I am trying to be aware of doing to myself....far too much.
























 



Tuesday, May 5, 2015

Mental Health Week - #getloud - My Story


As I sat there in my room, tears running down my face, I found myself asking, "How did I end up here?"  Here I was, sitting in a room that can only be described as a room that was the result of a university dorm room having procreated with a hospital room.  It was my first day, of many days, in the private mental health facility I checked myself into in July of last year.  How did I go from a high functioning, high profile, Director in an Investment Firm on Bay Street to someone mentally ill and so fragile I now needed a full time hospital to take care of me? 

Mental illness can creep up on you.  It doesn't have to be dominantly present from the time you are a child.  Or debilitating throughout your youth.  Sometimes, by the time you reach adulthood you are just tired of fighting to keep it at bay.  You get overwhelmed by life, and you realize it has caught up to you.  You have a mental illness.  You are no longer high functioning.  In fact, you are barely functioning at all.  

I always knew there was something different about me.  The way I reacted to things was not like the other people in my life.   The way I felt about things wasn’t the same as most.  Every emotion felt overwhelming so all my energy was spent pushing those emotions aside.  I showed little emotion but anger.  I was exhausted.  It was like running a marathon in my brain every day.  It caught up to me in my mid 30s.  Like any other disease, mental illness can take its time developing inside of a person until it starts to affect their everyday life.  And it can make you feel tremendous shame.  That is the difference with mental illness as compared to other diseases.  Most diseases don’t come with so much shame attached to them.  Very few people with Cancer are looked at the way people with mental illness are looked at.  No one wonders what the Diabetes patient will say or do in an emotional or stressful situation. 

The facility my husband and I found for me had been on our radar since before the 2014 year even began.  I had fallen into what can only be described as existential angst in the latter half of 2013.  Constantly wondering why I was alive.  What was my purpose?  Why was I here?  It was excruciatingly painful.  By May of 2014 I was far beyond clinically depressed, I was completely lost.  I tried to push the darkness aside with every ounce of strength I had.  By June, I couldn't do it anymore.  I was tired of fighting just to convince myself, every waking second, of every day, that there was a reason I was here.  On June 4, 2014, I attempted suicide. 

Up until that fateful day, my husband’s fulltime job had been babysitting me.  I was so full of sadness and despair he worried about me constantly.  I talked endlessly about the unbearable pain.  During this time if my husband wasn’t physically at my side he made sure I was in touch with him every half hour.  Even if only by text.  If I missed the half hour mark he would call.  On that day he had meeting away from the house.  He did not want to go.  I convinced him that I could be left alone.  It wasn’t long after he left that I realized I shouldn’t have been left alone.  The racing thoughts, laden with pain, wouldn’t stop.  I had been fighting for so many months.  I was so tired.  I sat on the floor of my bedroom with every prescription bottle I had.  Some pills were for mental pain, for depression.  Some were for the diagnosed Bi Polar disorder.  Others were for back pain, some to relax my sore muscles at bed time.  And others were to sleep.  I had a lot of pills at my disposal.  And wrongly so.  Looking back, there is no reasonable explanation for someone with a mental illness to have access to that many pills, but I did. 

I sat on that floor with all of the pills around me and I wept.  I knew I was going to cause considerable pain for so many I was leaving behind.  But that guilt, did not outweigh the pain I couldn’t shake.  I answered my husband’s text messages.  I told him I was fine.  One handful after the next, I took as many pills as I could stomach swallowing down.  I got into bed, and I waited to die.   There was a point I panicked that I had made a mistake.  That I didn’t, in fact, want to die.  And then I realized that it was already too late.  I had taken the steps and I had to make peace with it.  No more pain, I thought to myself.  No more pain for all those around me.  Pain I am causing.  I decided it was out of my hands.  I had made my choice.

My husband will never forgive himself for those few hours he took away from my side.  Just a few hours to go to a meeting away from the house.  He says he feels guilty every time he walks out our door now.  He flashes to that day and remembers racing back to the local hospital to meet the ambulance.  Praying I would live.  I gave him that burden to bear.  He has forgiven me, he has not forgotten.  I have forgiven myself, I have not forgotten.  That is a place I will never go to again.  I hope.  If I ever sense that kind of despair coming over me, I will check myself into a hospital Emergency Room.  Even if just to be monitored and to keep myself safe.  I was so lucky that day.   Answering the phone saved my life. 

With all the drugs in my system I was so incoherent that I didn’t even realize I was answering the incessantly ringing phone.  Answering the phone prevented my death.  My husband realized immediately on the other end of the phone that something was terribly wrong.  He called 911.  They made it to me, and I to the hospital in enough time to save my life.  I resented that for days, weeks even.  I resented being alive.  And that is why I didn’t fight it when the mental health facility called and said they had a bed.  If I wasn’t happy that I lived, I needed serious help.  More help I was capable of handling on my own.    

Thank goodness I had allowed my husband to put me on the waiting list for the private mental health facility early in 2014 when everything started going very wrong for me mentally.  The waiting list is, on average, about 6 months long for those patients paying cash.  Just imagine if I was an OHIP patient.  Having to wait for the government backed health care insurance system to fit me in.  Do you know how many beds are available in Canada at long term mental health facilities that are sponsored by OHIP?  Not many.  My wait was long enough.  And even in that time, while I waited for help, I attempted suicide.   I was lucky I survived.  I wonder how many die every day simply waiting for a bed.

Upon arrival at the facility we were moved through the admitting process pretty fast.  They obviously understand that no one really wants to be there.  People just know they have to be there.  From there we were escorted up to the unit and to my room.  I hadn’t been away from my husband for more than a week since we moved in together in 2004.  That’s all I could think about standing in the middle of the room.  That thought was quickly followed with, “How am I supposed to live in this room?”  The room was very small.  And crammed in this small room were two hospital beds, two small desks, two side tables and two wood lockers.  One set obviously taken.  I was supposed to have a private room.  I do not do well in tight spaces with other people.  Tears pouring down my face I turned to my husband, and said "I am not staying in this room.  I am supposed to have my own room.  I want to go home, NOW.  Please honey, I beg of you, take me home".  He immediately began asking about other accommodation options.  He knew I was ready to bolt.  We were told that beds open up, not rooms.  All they had was a semi private room.  Once a private room opened up, I would get moved she told us, “It shouldn’t be more than two weeks”.  Aside from my husband I have never had a roommate.  Here I was in my most fragile state and I was to have a roommate who was a complete stranger.  My husband hugged me tight and begged me through tears of his own to stay.  I had to.  If for no one else, for him.  He asked the nurse if another semi private room was available.  “Perhaps one a little bigger”, he asked.  He could tell I felt claustrophobic in that room.  This tiny room wasn’t helping prepare me for my stay away from home.

They took me to another room where a woman I had seen checking in at admissions was unpacking.  We had already smiled at each other through our mutual tears. I quietly introduced myself.  Leaving my things behind, I walked hand in hand with my husband to the door of the unit.  I watched him walk away through the glass door.  I felt much like an infant at daycare for the first time, nose pressed to the glass pleading with my eyes not to be left behind.  I slowly made my way back to my new home to unpack.  Once done, I crawled into my bed and facing the wall, let the tears fall silently.  I didn't leave my room much that day.  I can't recall eating.  I slept on and off, and I cried.  For 24 hours.  I guess it wasn’t much different than the last few months at home after all.

The next morning was a Saturday.  I was awoken by the nurses at 645am.  “Standard practise”, they said when I asked.  I didn’t sleep very well that first night.  Inside mental health wards, at least the ones known to me, patients must be monitored constantly so the nursing staff are required to check on the patients all night long.  Every couple of hours a nurse enters the patient’s room and shines a flashlight on the patient to ensure they are safe and sound, and sleeping well.  A little ironic.  I am not a heavy sleeper to begin with.  Someone opening the door every couple of hours and flashing a bright light on my face didn’t help much.  Every two hours, my brain screamed, “I can’t do this”.

My room didn't have its own bathroom so on that morning I had another first by making way down a public hallway in my pajamas to get changed in a stall of the women’s public bathroom.  This was my now going to be my new normal?  What was happening to me?  I asked those questions to myself over and over as I brushed my teeth muttering hello to other female patients who were coming and going through the bathroom.  Once the shock of that experience wore off I slowly made my way to the cafeteria for breakfast.  Where again, I found myself facing another first, having breakfast alone, in public, seated by myself.  The cafeteria was buzzing.  It was buzzing far too much for my over active, very anxious mind.  There were so many unfamiliar faces.  So many voices all talking over each other to be heard.  I almost turned and left without food but instead I forced myself to stay.  A challenge faced. 

After breakfast, I wandered aimlessly back to my room.  I climbed back into bed and staring at the wall, I let the tears fall silently again.  We were allowed to keep our cell phones on the unit I was in.  Most of the other units didn’t allow this.  But on my unit they wanted you to stay in touch with the real world, the reality outside of those walls.  I texted my husband that second day and asked, "Please tell me how long I have to stay here?  How long must I give this before you will believe I gave it my best?”  He replied quickly with, "Two weeks.  Please give it at least two weeks before you decide to leave”.  I had hoped he would say a week.  But I resolved to stay for two weeks.  If not for myself, for my husband. 

I can honestly say those two weeks were some of the hardest days of my life.  They weren't awe inspiring days full of “ah ha” moments allowing for great distraction.  I wasn’t learning new and amazing things every day thus willing me to stay.  For those first two weeks you get a schedule and easy classes to attend like horticulture and art.  The time is simply spent getting used to waking up at a certain time and going to bed at a certain time.  Your challenge is to make it to a few classes a week where you are not pushed to do more than arrive on time.  Your schedule included the times you are allocated to receive your medications daily at breakfast, lunch and dinner.  Each time you went to the medication window you were required to share with your nurse how you were feeling.  And how you were truly feeling is what was expected in your reply.  As one of my nurses said that second day, "fine, okay, good, and alright tell me nothing about how you truly feel and are not acceptable answers”. 

By the end of the week one I found myself talking often with two younger women who had arrived on the unit just before me.  By the end of week two I found myself playing basketball in the gym with them.  Week three, we were walking to classes together, always sitting together.  That week I finally got moved into one of only a few private rooms with its own bathroom.  Looking back, I actually spent very little time in that room.   Suddenly I found myself looking forward to French toast breakfast Wednesdays and pancake breakfast Friday's in the cafeteria.  Where I sat at “our table” with the other patients from my unit.  I was spending all my free time with people.  I was knee deep in the hard psychology classes trying to figure myself out.  I found myself standing at the medication window three times a day, tears streaming down my face as I described in depth how I was feeling.  How did I end up HERE I wondered?  I got sick.  That's how.

I am a step mother, a wife, and a domestic engineer.  After spending 21 years on Bay Street, mental illness derailed my life as I knew it.   I have a new life.  It’s different.  Not better.  Not worse.  I am loved.  That is all I focus on now.